Sunday, September 27, 2009

Question - Muscle Pain (4 weeks after chemo)

I have had muscle pain in my legs and arms this past week, seems to be getting worse everyday. I am trying to figure out if this is a side effect from chemo or what is going on. I am fine otherwise, and not really tired or anything. I'm still walking, even did a bike ride. I'm sure I'm not overdoing it. The muscle aches are when I am standing or laying down.

And here I thought this would be when I would be feeling the best - 4 weeks after chemo and not yet started radiation!!

I am going for bloodwork on Tuesday so I will talk to my nurse about it as well. The bloodwork is to see if my counts are high enough to put me on the list to get my port removed.

Still no word on when radiation starts, although I've heard I may only get 1 day notice.

Hope everyone is having a good weekend!

40 comments:

  1. Did you have a taxane based chemo like taxotere or taxol? They will cause muscle aches and it takes some time before that is worked out of your system. I still have residual aches and numbness from taxol and I had that in 2006. Do check with your nurse or doctor but it doesn't seem unusual to me, especially if you have been walking a lot and riding a bike.

    And true enough about radiation...they try and give you advance notice but every centre is different.

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  2. I agree with Sherry. I still battle with muscle pain, some days worse than others, and I had Taxotere and Herceptin in 2006-2007, which are the likely culprits. Give it time, and I have found that exercise is a great way to alleviate some of that muscle pain. Pamper yourself when you can. For me, the radiation was a piece of cake compared to chemo.

    Praying for you!

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  3. Something else to consider, Beth, is that menopause brings with it assorted aches and pains and joint issues. I went into chemo induced menopause. I really am having a terrible time with joint aches and pains, esp. when I'm cold. It is really absolutely miserable at times, and I find myself worrying what I will do when winter gets here. When it is really cold.

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  4. Hi Beth.
    I also get leg pains and the muscles cramp in my arm on my mastectomy side. I thought it was the Tamoxifen at first but they took me off of it for 2 weeks and they continued to ache.Then they said I was probably overdoing it, I have a tendency to do that but it isn't that either.Our bodies take a huge change with everything that has been put into it and I am thinking it just needs time....but how long!
    I am glad you are trying to stay active as I have heard that so many people just don't do anything but lay around.Not good..
    Take care Beth :)

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  5. It takes a while to recover from the treatment. Hope you had a nice weekend!

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  6. Beth, does it feel more like bone pain than muscle pain? Is walking painful in the ankles? Do your shins ache? It almost feels like a bone-on-bone grinding pain with the ache transmitting up your legs.

    It's definitely left over from the Taxotere or taxol. Dr. K told me to exercise, specifically an impact exercise to stimulate bone marrow growth. Hot showers helped some. I didn't have any luck with the topical ointments. Advil did work well to help me sleep though.

    I still have bone pain though not as severe. Ankles, shins and knees are the worse for me. It comes and goes and definitely isn't steady.

    Keep us posted!

    Hugs,
    Sharon

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  7. Beth, I forgot to mention that dehydration can also cause the muscle cramps. I was told to keep up with the fluids just as I did through chemo.I had never been one for water before but even now I carry a bottle of water with me when I go out.:)

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  8. so sorry to hear about your aches and pains, hope you get relief soon xx

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  9. Beth I am also having the most unbearable muscle & bone pain. Deep in my shins and my ankles wobble....My Onc. told me it was definitelty the TAX....

    Hope you feel better soon AlliXX

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  10. Okay so Im not alone. I was worried. I finished chemo on 10/13/09. Which was Taxotere and Cytoxan. My body hurts!!!!!. My MD also told me that the muscle aches are a result of the Neulasta shot 24hrs after chemo. Gearing up for Radiation, did SIMS on 10/27/09.

    Thank you ladies, you have set my mind at rest

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  11. Hi Beth,

    I'm having the same pain as you do. I too, was diagnosed last April. I just finished my 6 treatments of Taxotere & carboplatin. I also had Naulasta. I don't have to go for rad. but I'm on Herciptin for 7 more months. My pain relieved is walking. As long as I'm standing and walking the pain stop.

    Be strong and stay active.

    XOXO
    Fame

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  12. Thanks for the post!The post is very much informative.Flex Protex is a good way to relieve joint pain. Arthritic patients feel a lot of pain in the joints which can be alleviated by taking Flex Protex . Being made of glucosomine, the main component responsible for relieving joint pain, this product is here to stay.

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  13. Wow! I finished chemo (taxol and Cytoxin) the end of August and started having muscle and joint pain about 6 weeks later. I had NO problems during chemo treatment and was very fortunate that I could exercise through the treatment although somewhat less intense exercise than normal. Now I am "done" with radiation and chemo and I am MISERABLE! I thought at first it was because I was exercising more but when I stopped for a few days the pains did not go away. I cannot really find any medical websites that discuss this delayed response but obviously I am NOT the only one! Did anyone have same experience as me? NO problems during but delayed problems later? Also interested in weight gain.. I put on 5 pounds and thought it may be less exercise but now I think it could be fluid retention associated with the taxol. Clothes fit fine. Have always been consistently same weight so strange that the weight is up. I did treat myself to a massage yesterday since I was in so much pain and therapist said fluid in my ankles and feet.

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  14. all of your comments have helped me tremendously, i am three months past my last and final chemo treatment. I did six months of chemo for Non Hodgkin's lymphoma stage 2. RCHOP was my cocktail of drugs, My body felt then like it was being beaten up and punched. I still feel like that, though i am very strong and run around and am very active, but all day even at night laying down i am in pain. it's as if every joint and muscle is being stomped on. But it seems the more I walk and stretch and exercise the better i feel. i hope all goes well for all of you who have dealt with cancer. and you reminded me to once again drink plenty of water..thanks...

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  15. wow after reading the comment from Nov 8, 2011 I really felt better about my pain. I had the same treatment RCHOP. I have a desk job and find myself getting up and walking around the office just to relieve the pain in my legs, like you say as long as your moving, so sleeping is really a problem. But its a small price to pay to keep on living.

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  16. I had 25 radiations followed by 4 TC. I finished it on the on the 31st of November.I was perfectly normal during my Chemo. I am experiencing severe body pains now,one month after the completion of Chemo. Your experiences has given me peace of mind and solace as I am not the only one to experience it.

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  17. I am 5 months post chemo for stage IV colon cancer and kidney cancer (unrelated). I had two major surgeries back to back and then 6 months of chemo, so I was not at all active for over 8 months. I have some severe neuropathy in my hands and feet, but despite that issue, I decided I needed to get back into shape so joined a gym with a personal trainer to help me. Since starting to exercise late in September, I started to note muscle and joint pains. At first, I thought it was from the exercising, but it has consistently gotten worse. So much so that I find it difficult to get around. If I sit too long, to get up is excruciating. Unfortunately, because of the neuropathy in my feet, I am unable to stay on my feet for any length of time. All of my exercises at the gym are non-weight bearing, even using the recumbant bike for my aerobic exercise. I go to the gym three times a week and then I am unable to do anything the next day, due to the pain. Exercising definitely makes me worse, but I have not gone in over a week and the pain is still the same. My oncologist shrugs her shoulders and has no answers, except to say I am a "very unusual case" as I have been right through my treatments. I have been on many blogs with others verbalizing the very same things, but the medical community seems real reluctant to recognize this issue and certainly has no answers to it. I, too, have been told, at times, when I had a side effect or issue, "It's not the chemo, you must have picked up a bug." I am a nurse with many years of experience and I have seen many things happen to people with the medical profession denying it is related to a treatment, or drug. More than once I have proven them wrong. How do I prove them wrong now? Any ideas out there?

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    Replies
    1. you are right about the oncologist they don't have a clue in how to treat the pain that is caused by chemo. My sister have neuropathy in her arm and hands she has been prescribed morphine, which do not help with the pain only makes to doppey, it's amazing that the medical profession keeps this side of chemo a secret from the individuals that are receiving the treatment. You should document what you're taking that is working because my sister onc did not even suggest that she should take any kind of vitamins. I'm looking into the Gogi or Noni juice to build up her immune system

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    2. I found your post 4 years later not sure how you feel now. I am too developed muscular pain all over my body one month after completion of colon cancer chemo treatment. Now is 9 month post chemo, the pain is not getting better. Some days worse some days better largely depending on how I rest the night before. Exercise helped little on pain but me feel healthier. My oncologist said it is not common. It sounded like my own problem. Glad to see your and other people's posts, which tells me it is a common side effects. Which you doing well.

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    3. I found your post 4 years later not sure how you feel now. I am too developed muscular pain all over my body one month after completion of colon cancer chemo treatment. Now is 9 month post chemo, the pain is not getting better. Some days worse some days better largely depending on how I rest the night before. Exercise helped little on pain but me feel healthier. My oncologist said it is not common. It sounded like my own problem. Glad to see your and other people's posts, which tells me it is a common side effects. Which you doing well.

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    4. (My name is Melissa)
      Please let me know if you are still having problems. I finished my chemo just over 2 weeks ago. I swear my muscle pain has become worse! I can barely bend down and then get back up. I am worried that at some point I won't even be able to walk. Please share what you have experienced and if you found any relief!

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  18. I too am experiencing this terrible pain 3 months after finishing taxotere for breast cancer. This has brought on early menopause. I am 45. Yesterday my oncologist prescribed an anti depressant Efuxor which she said will help with the pain, hot flushes and night sweats!!! Has anyone else tried this? She said the pain is due to the menopause caused by the taxotere.

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    Replies
    1. Wow, I guess im not alone, I too just finished chemo about 4 weeks ago for breast cancer. I went back to work as a dental assistant and into my third week I started getting joint pains in my hands, at first I thought it was cause I really hadnt used my hands in the past 6 months well my onc dr said it was due to returning to work n using muscles I hadnt used but would go away! I left work crying one day, I was in so much pain I didnt finish the work day, my dr gave me an rx of celebrex though my ins wont cover it because I dnt fall into their criteria :( r u kidding me!! I asked my dr to please prescribe me something that will help me until my ins approves the celebrex, im taking folbic tablets and naproxen, sad to say its not working.. Im take 2-3 hot baths in epson salt, it helps for an hr or two. My hands feels like they have been crushed with a sledge hammer...

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  19. I am sorry to hear about this about what you are going through, I am proud of what you are doing, instead of sulking in one corner after being diagnosed with breast cancer, you are too strong of facing your fear and conquer it. Truly inspiring blog you have here.

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  20. I feel sorry to hear about you that having pain. Arniflora is the best one.

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  21. I was diagnosed with Breast Cancer last Jun 2011. Had double masectomy Aug 11, 2011. Started chemo Aug 31, 2011 (4 rounds of Adriamycin and Cytoxan every other week). Then had 4 rounds of Taxol and Herceptin every other week. Finished chemo Dec 7, 2011 but continued with Herceptin every 3 weeks until October 2012. Started radiation Feb 8, 2012. Had 25 treatments. Finished March 14, 2012. Throughout this whole ordeal had the chemo side effects. Got over them. Including the horrible tingling on hands and feet. Still continue to feel a little numbness on left toes but exercise by rolling a massager under toes every day. Getting better. Felt pretty good through radiation. Thought I was over all the side effects, but here within the last month started to feel muscular aches on legs, arms and really entire body. I do exercise and walk but seems to really hurt more with more strenuous exercise. I have also been diagnosed with fibromyalsia so I think that does not help. I wonder if it could be some other form of cancer (bone) that has invaded my body within such a short time. My PET scan in Jan ruled out any cancer. My blood work in April ruled out any tumors. Negative thoughts trigger stress and an emotional rollercoaster which seems to make those muscular aches worse. Depression sets in. My only hope is faith in God and trusting in him. Will check with onc doctor/nurse next week when I go for my next Herceptin treatment. Tyenol seems to relieve the aches and also started taking a Hi-Potency Stress vitamin from Sun Harvest.

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  22. Hi everyone, Thanks for sharing. I too started to get very achy muscles and bones after completing my chemo adriamycin and cytoxin for two months then 3 months of Taxol for breast cancer. After I excercise, I feel like a truck has run me over the next day. Tylenol helps take the edge off and I hope that the painful hips, joints and muscles goes away with time. I am 2 months out from my last chemo. Now going thru radiation. The worst has been these darn joint and muscle aches, Even keeps me up at night if I dont take the tylenol.

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  23. Taxol/Carbo/Avastin 2010 and 2011 but then Avastin maintenance until Jan 2013 and I'm Really Miserable with muscle aches. Unlike most of you it is when I move and All in my legs. When I sit or lay I don't have pain. It got continually worse so that my last Avastin treatment in Jan 2013 I thought I'd need a wheelchair and this muscle pain is the reason I went off of Avastin which my onc believed was keeping me NED from Ovarian Cancer. Sigh. Advil helps some but sometimes doesn't take care of it. So now I don't know if it started with the Taxol and continued with Avastin use or what. You're right, the oncs seem ignorant of it. Will consider a Neuropathy clinic- what do I have to lose? As with most of you it sometimes gets better with walking. I'm not a sedentary person so I like to go, go, go and I push through the pain. Not fun. And getting very weary of it. Feel like I will be like this for years and if I should recur and have to have more chemo- well, I'll worry about that when it happens.
    Have any of you considered a neuropathy clinic? It IS muscles and not joints and mainly in my thighs. Ouch.

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  24. I am really enjoying reading your well written articles. It looks like you spend a lot of effort and time on your blog.Thanks for sharing this one.

    Muscle & Joint Pain Relief

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  25. Hi all,ive just finished taxotere for breast cancer 3weeks ago,During chemo I experienced extreme bone pain ,im still going through the same at the moment,
    I do have two prolapsed discs in the base of my spine,which causes constant pain even on morphine slow release tablets.
    However this does not explain pain in my long bones (legs and arms) also hands ankles and muscles.start radiotherapy tomorrow ,any help out there to explain pains,will talk to nurses tomorrow see if they can help.

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  26. Abour 1 month ago I finished a 4month cycle of ABVD chemo for Hodgkin's Lymphoma. I was given Nuelasta occasionally too. Though they're not as frequent or as severe as they were when I was in treatment (especially after a Nuelasta shot, those were always rough) I am still waking up with bone and joint pain that starts around the hip and is at its worst in my knees and shins.

    Most days I can get by with Naproxen. When it's very bad I have to take Percocet or Flexeril. I don't like having to take narcotic pain meds like Percocet, as the effects wear off really quickly for me, leaving me in pain and wanting to take more. This is why I only use them when the pain is excrutiating.

    The Flexeril works very well for muscle pain, and while it can make you drowsy, it's not an addictive opiate pain med. If your muscles are the source of your pain, ask your doc about it or about other muscle relaxers. They may give you relief and let you avoid relying on addictive narcotics.

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  27. Where else could anyone get that type of information in such an ideal way of writing? I have a presentation next week, and I am at the look for such information.

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  28. I have APL and just finished 2 five week rounds of arsenic trioxide. My last week of treatment I noticed my shoulders, arms, neck area feeling achy. I at first thought I overdid it, too, but now I know it's got to be something else. Hoping it all goes away with time. I am also experiencing chemo induced menopause, wonder if that has something to do with it, too.
    Can't wait for the pain to go away, mostly sore when I am doing nothing or doing too much.
    Good luck to everyone, we are survivors!

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  30. I want to thank everyone for your comments. They really help when you feel terrible. I took 6 month of Carboplatin and Paclitaxel. I never got sick and felt pretty good until the last 2 months. I now have terrible pain in my legs and numbness in my feet and right fingers. From all I have read, the Carbo is the guilty party for the problems. It can cause your bones to hurt, etc. My doctor said to try B6 and B12 along with my vitamins. I take 2 per day of the B6 and 1 B12. It seems to work pretty good for me. I take a lot of hot baths, still have problems with pain but I keep trying different stuff all the time. Keep writing, we will come up with something that might make all the difference in the world. We have already been through the worse. Only UP is the answer now.

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