Hi friends and family. The last couple of weeks have been good, spending the time getting healthy again (snow is gone, but summer sure isn’t here yet!) Lots of walking, even a few short runs. Read a few good books already.
Started physio for my arm, painful but should get all of my motion back. Cath calls herself a "physio-terrorist". Says if I can't be tough enough on myself with the exercises, to go back to see her. She says its 3 vessels that are "caught" in the scar tissue, and need to be massaged and stretched until they are freed.
Update - I heard later this is called 'cording' - for more info see http://www.stepup-speakout.org/Cording_and_Axillary_Web_Syndrome.htm
We met with the radiation oncologist, who was very nice and informative, but gave me an overwhelming amount of information about a clinical study he asked me to participate in. I had to make a decision the next day in order to do the prep work and start it within a specific timeframe from the surgery. This would have put the radiation before the chemo, among other differences, but it was just too much info with too little time, so I passed on that. I will go ahead with chemo as planned, and meet with the radiation oncologist again when chemo is done. There will likely be other clinical trials open at that time. So I’ll save your radiation education until then :)
The port goes in next Friday (May 1st) and the first chemo is the following week (May 7th). I’m starting to collect cute head coverings in preparation for the hair loss :(
Here’s something interesting – Karen's mom (who just finished chemo!) tells me that for the second set of chemo, they put your hands and feet on ice packs during the IV to stop it from circulating to your fingers and toes, since it can cause your nails to fall off. Lovely...
Enjoy our spring weather!